After a four year battle with ovarian cancer, my mother died in Oregon in 2004.
More than once during those four years, Mom reminded me that she was lucky to live in a state in which assisted suicide was legal because there was nothing she feared more than being incapacitated, locked inside her dying body, in pain, and unable do anything for herself, let alone to express herself. "At least I won't die with Alzheimers," she'd say, implying that losing one's mind and one's sense of control is more dire, somehow, than battling stage 4 ovarian cancer.
Over the years, Mom had gathered a collection of pills large enough to be considered a lethal dose of painkillers. Those pills -- the simple possession of them -- gave Mom a sense of security, knowing that no matter what, she wouldn't need to suffer. On the one hand, she seemed to deny that she really was terminal and that she really was dying (even after she was on Hospice), but at the same time, she'd mention that the fact that she lived in Oregon would allow her to die with dignity.
When the time finally came, Mom went downhill too quickly to self-administer her lethal dose of painkillers. Overnight, she seemed to not only became confused, she lost the ability to swallow reliably. And because the law requires that the patient be of sound mind and to self-administer the medication, Mom's window passed her by. And Dad, at that point, felt awful that he didn't see that fleeting window and draw her attention to it, and he worried that she might now suffer needlessly and be unable to express herself and her pain. It was excruciating for all of us to know that Mom's wish, her last act of control in her life, would not be granted.
So we waited for nature to take its course. And while we were treated to some undeniable gifts during those days (such as the Mom recalling her life's most precious memories in halted words and emotional grimaces and her whispered request to Dad: "Can you carry me across?"), I know that Mom didn't die as she wanted and on her own terms.
I'll never know if or how much she suffered. I choose to believe that, after her spirit left her body on Wednesday, she was just a shell until her heart stopped beating on Sunday. I
want to believe that, but
did she suffer during those days? Did she endure what she so feared: being locked inside herself with her pain, unable to express herself? I don't know... and it sometimes eats me up to this day.
Washington State will be voting on its own "death with dignity" act, Proposition 1000, in a few weeks. I am a firm supporter of this proposition because people like Mom, who are at the end of their lives, suffering and in pain, need to know that they have the option to go when they feel it's time. Some, like Mom, won't ultimately act on the law, but people like her will have one less thing to fear and to worry about, knowing that the option is
there for them. Mom depended on that knowledge and it gave her peace at a time when peace was the ultimate gift.